clapAI/FinData-dedup · Datasets at Hugging Face

text stringlengths 1 675k ⌀
@hhs_ash @hhsgov @ 2 of 3. the # #diagnosticschallenge enables the feds to ruin new #lyme tests-if using the #cdc’s 71% false negatives (at best) #lymedisease test or the cdc’s fake lyme serum (that is only from those who don’t get that sick), tests will look to have too many false positives.
@hhs_ash @hhsgov 1 of 3. #hhs is using # (which it runs) to give patients false hope & to continue manipulating #lyme medicine for #bigpharma profit & to keep past deeds covered up. as #hhs has said, the goal of @ is to control both federal and private research money. = hhs #lyme
as we head into warmer weather, it's time to get serious about the tick check dance. https://t.co/thsxvjaqyb a # education & awareness “healthathon” challenge winning solution from @palyme1, dare 2b tick aware, @invisibleintl, louis & dan and the invisible band. @cohengive
@lymeloonies @ #hhs is using # to present false hope that they are working towards a real & accurate #lymedisease test- yet the tests have to be validated & @ refuses to tell us how that will be done. using the #cdc test or serum will make them look to have many false positives.
@lymeloonies 3/2020 bay area lyme showed that the cdc’s acute-only #lymedisease test results in 71% false negatives & there is no #longterm #lyme test. there must be a special ruling for lyme disability. rather than push for that # (#hhs) published lyme is merely “disruptive.” @
@lyme_x @cohengive @hhsgov @hhs_innovates to do that # will have to start answering #lymedisease patients’ questions they ignore & drop #hhs that is still using tactics like putting sood, shapiro, wormser onto the #tbdwg to keep #lyme information from coming out. lyme isn’t just “disruptive!”
@lymeconcerns @lmiller02332699 @truthmedical @ exactly.
lda may news: dr. jones/societal cost/cd4 t cells/horowitz/trauma & loss/lyme & mental illness/alpha-gal/tick bites/b. duncani/lyme vax/$10m prize/cat owners/tick stik/county levels/bullous em/pat smith video #lda #lymediseaseassociation https://t.co/jau8eym8hr
@quincys16831534 @lmiller02332699 @truthmedical @ thank you for being active & informed! & replying!
@quincys16831534 @lmiller02332699 @truthmedical @ it’s looking that way. in the past they’ve tried answering (said they said #lyme was disruptive instead of disabling because they wanted to avoid using labels (labels needed to get disability). more of us asking, the more of us see they aren’t patient-centric & are using tactics
@lmiller02332699 @truthmedical @lymeconcerns @ they'll never answer.
& when the #hhs tells us their # is doing good things for #lyme patients & is patient-centric, is hhs & #hhs just put sood onto the #tbdwg & he is one of these #aldf/#idsa anti-long-lyme players & he was at dearborn where & when they made #lymedisease testing fail.
@llyme21 @kittenbusk81 @lymeconcerns @ i'm agree with that. all of us must be in alert everytime cause around us skarks, predators for make money with routing us to pharma business. they can sell mothers, fathers, everything for money, don't be a slave, don't show your hopeless take care !
#lyme peeps, we need to keep liking & retweeting 2 send it out again. u hit retweet & then the quote option- to add your own #hashtags & @usernames. #hashtags get the tweets in search results of that same word. @usernames get them notified of the tweet. like #lymedisease & @
@doelyme @ yes! the word is getting out! #lyme patients aren’t fooled any longer with federal agency tactics designed to string patients along with false hope while the feds keep manipulating those things to keep #lymedisease medicine from evolving! # #tbdwg
@lymeconcerns @ @ - #lymedisease patients want to know, why do you keep ignoring us if you aren’t really just a false hope arm of the #hhs? what are you doing to ensure the new #lyme tests in your diagnostics challenge aren’t going to fail just like the #cdc lyme test or serum? #
@lymeconcerns @ @, how will the tests in the diagnostics challenge be validated? against the #cdc’s acute #lyme test of 71% false negatives (worse if it’s not acute) or the cdc’s false #lymedisease serum from only those who don’t get very sick? # is controlled by #hhs=false hope.
@lmiller02332699 @ajackso63831215 @lyme_x @hhsgov @cohengive yes, where’s the answer #? don’t you claim to listen to patients? #lymedisease patients keep asking how the new #lyme tests will be validated. by #cdc failed lyme test if cdc fake lyme serum? & why’d you screw us by saying lyme is just disruptive?
so the #cdc made their #lymedisease testing failure even worse- yes, that’s hard to imagine but they did. how is it the #tbdwg & # are helping #lyme patients? false hope from manipulated anti-long-lymers isn’t helping. https://t.co/l9qkfpkval
@nqrman is dat
has a new website! visit us at https://t.co/yo5sk48296 and let us know what you think. email feedback to lymeinnovation@hhs.gov. @cohengive @hhsgov @hhs_innovates #lymediseaseawarenessmonth #togetherredefiningthelymestatusquo https://t.co/jtab2ajtmk
$1 million diagnostics prize launches to improve lyme disease testing https://t.co/hsjnkil5pi
the diagnostics prize is to develop #diagnostics that can accurately detect active #lymedisease infections. via @luminarylabs https://t.co/hec89ikomv
we desperately need improved #lymedisease diagnostics. the ⁦@hhsgov⁩ & ⁦@cohengive have launched the @lyme_x diagnostics prize. $10 million diagnostics prize launches to improve lyme disease testing \| https://t.co/gxtord8lnb https://t.co/npaxhpwbdx
the u.s. department of health and human services and the steven and alexandra cohen foundation have launched the diagnostics prize. it’s a $10 million competition to accelerate the development of new ways to diagnose #lymedisease https://t.co/zzclpfosq0
@lyme_x @hhsgov @cohengive we keep asking & @ keeps ignoring us, the patients! his will the #lyme tests be validated? #cdc’s 71% false negatives acute only #lymedisease test? # is run by #hhs.
although there is no safe #tick attachment time & it’s known to be incorrect, sunil sood has told audiences it takes 48-72 hours to transmit #lymedisease & #hhs put him onto the #tbdwg & #lyme treatment subcommittee to control the vote & report. # is #hhs & is manipulated
https://t.co/rriss5skrj $1 million diagnostics prize launches to improve lyme disease testing
@xf3rrero @de on tour
#lyme #aldf #hhs #tbdwg # #hhs #lymedisease ticks earlier laid 2000 eggs, now x3. a coming pandemic. lyme has cousin - syphilis. no cure because of $. dr r. horowitz: but to stay stuck at this point after 40 years of this illness it is a medical crime against humanity
# is #hhs & hhs still implements the same immoral & shady tactics the feds always have for #lymedisease. if were interested in a good #lyme test or doing good for patients, it wouldn’t be run by the same agency that is also doing things like putting sood on the #tbdwg
2 of 2: #hhs put sood onto the #tbdwg to control the vote & #lyme treatment info (only subcommittee info can go into the final report) -while at the same time has been telling us they are patient-centric in their # effort ( is hhs). how’s not a ploy of false hope?
[3/3] @lyme_x is identifying, developing, and implementing advancements in lyme disease care. in addition to accelerating next-generation diagnostics, is spearheading development of human-centered solutions and fostering breakthroughs in education and awareness.
$10 million diagnostics prize launches to improve lyme disease testing \| hhs gov https://t.co/khf2bhwnco #lymediseaseawarenessmonth #diagnostics #testing #innovation #science #publichealth #lyme @cohengive @challengegov
hhs, cohen foundation launch $10m competition for new lyme disease diagnostics. the diagnostics prize competition is accepting proposals for new methods to detect active lyme disease infections in humans. https://t.co/piejlh881f
$10 million diagnostics prize launches to improve lyme disease testing \| hhs gov https://t.co/9ifcbavfcm @lyme_x @cohengive @hhs_innovates @challengegov diagnostics prize info: https://t.co/qwg1z689vp 💚 # 💚 #lymeinnovation 💚 #lymetippingpoint
$10 million diagnostics prize launches to improve lyme disease testing https://t.co/qzely2i9dh
from lda website: new lyme research opportunity: hhs launches $10m diagnostics prize https://t.co/4nnjawgbb7
info on the @ phase 1 prize competition for detecting "active #lyme infections in people". concepts due august 8. see below! # #diagnostics #prize #research #science #innovation
the #lymediagnostics prize is sponsored by @lyme_x, a partnership between @hhsgov & @cohengive. in addition to accelerating next-generation diagnostics, is spearheading development of human-centered solutions and fostering breakthroughs in education and awareness.
through this multiphase # competition, @hhsgov and @cohengive aim to develop diagnostics that can accurately detect active #lyme disease infections. learn more at the june 16 virtual information session: https://t.co/ji4e03k3cy #lymediseaseawarenessmonth #diagnostics 2/2 https://t.co/amrylkfvjh
@altgovdoc @khoney the same #hhs that put wormser, shapiro, & now sood onto the #tbdwg to control the vote & #lyme treatment subcommittee, runs # & the #lymedisease diagnostics challenge. haven’t said yet how new tests will be validated. against #cdc lyme test or serum of non-#longlyme cases?
lyme x #lyme_x # … #lyme_disease #lymedisease #hhs #top_experts #institutional_betrayal
so #hhs started # (i thought it was a nonprofit) & they’ve been saying they are doing great things for #lymedisease patients but this whole time they’ve been putting aholes onto the #tbdwg to keep persistent #lyme out of their publications. this is 3rd time they’ve done it.
#hhs runs #. #hhs put sood & an aldf advisor onto the #tbdwg. those 2 things #lymedisease patients are being given false hope with-the controlling feds are still manipulating. see how the #tbdwg is manipulated & 1 doozy of a fight #lyme advocates win! https://t.co/lzdvcfnxfm
#cdc, #nih, & #hhs put sood onto the #tbdwg to control them tbdwg vote & report to congress- knowing he’s been pushing false #lymedisease info for years. now we are to believe #, run by the #hhs, is doing good for #lyme patients?
@inappro_ali yes sood has been giving out incorrect & bad #lymedisease advice for years and the cdc, nih & hhs (hhs is in charge of #) put sood in control of the deciding #tbdwg vote, knowing full well he’s been pushing false #lyme info for years!
if it’s the tipping point for #lymedisease & # and the #tbdwg are making that difference predicted 2 years ago & 5 years respectively, then where are the public service announcements about #lyme being disabling & demanding #doctors are protected & insurers pay for treatment
learned from patients through almost 700 hours of interviews, listening sessions, and workshops. juan’s story shows us there’s a need for improved #diagnostics. (https://t.co/z4csnxkdwg ) #health+("healthplus") @coformahealth #lymeawarenessmonth @cohengive https://t.co/idrdoktapw
@de @justvalerie127 ey
@lymenews @khoney @lyme_x @liv_lyme # won’t tell us how their #diagnosticschallenge will be validated. through #cdc’s acute lyme test of 71% false negatives or #cdc’s false #lyme serum that’s from people who don’t get very sick? have to validate somehow, it’s required, so if use those 2 ways tests are doomed
why doesn’t insurance & medicare pay for #lymedisease clinics like #envita? (or any treatment?) why haven’t we heard the #tbdwg or # pushing for that, hard? besides the feds controlling both & insurers & #bigpharma wouldn’t like it. #lyme @envitamedical
the livlyme virtual summit is under way. catch up on what is up to as hhs's dr. kristen honey provides an update on the past year's achievements on behalf of lyme disease community. https://t.co/wqptclr1l6 @liv_lyme @cohengive https://t.co/46f06kw3go
#lyme “so sour! but you’re so sweet for all that you’re doing! keep it up!” 💚💚💚 the force is strong with this one #oliviagoodreau @liv_lyme #maythefourthbewithyou #lymetippingpoint #lymeinnovation #theforce # https://t.co/vytjnajogh
@liv_lyme @markhamill @lymechallenge @oliviagoodreau @starwars @jokermovie @jokertv @starwarsexplain #lyme “so sour! but you’re so sweet for all that you’re doing! keep it up!” 💚💚💚 the force is strong with this one #oliviagoodreau @liv_lyme #maythefourthbewithyou #lymetippingpoint #lymeinnovation #theforce # https://t.co/wmbl9ty9ge
catch up on what is up to at the livlyme virtual summit https://t.co/azldwmyncd this sat. may 7th. hhs's dr. kristen honey will be providing an update on the past year's achievements on behalf of the #lyme disease community. @liv_lyme @cohengive https://t.co/ohektrumby
@dilxsch was mit
im clutch https://t.co/tfgquato76
@lyme_x @cohengive # is also persuading researchers to join their diagnostics challenge but won’t tell them or #lyme patients if they will be using the #cdc false-negatives #lymedisease test or fake cdc lyme serum (not from #longlyme patients) to claim the tests have too many false positives.
@lyme_x @cohengive # published #lymedisease was merely “disruptive.” it’s also working with #hhs, #cdc, & #nih when those 3 have been & still right now are working to keep lyme truths from being disclosed. they also have been manipulating the #tbdwg. why would we trust then?
@de let’s go
@de stark
@de omg stark bald 1k
@lyme_x @lymenews @cohengive @hhsgov the #bigpharma-agenda, anti- #longlyme feds have to be removed from the federal agencies before any good effects will be realized from # and #tbdwg recommendations. #lyme #lymedisease
@stephen02873518 @ajackso63831215 the corrupt #bigpharma-agenda feds have to be removed from the agencies & disclosure of why must happen before any #tbdwg or # recommendations will have a good effect.
@lymeconcerns @lymenews @lyme_x @khoney we must get the feds out of the process that’ve been serving the #bigpharma #idsa & #aldf agenda of illness for profit for decades! #lyme medicine will not be allowed to progress til they are out of the agencies! #lymedisease peeps-join the lyme revolution on fb! # is #hhs!
@lymenews @lyme_x @lymemind @cohengive @hhsgov # published #lymedisease is merely “disruptive” that seems like a stride backwards to me…. they said it was to avoid “labels” but you have to be labeled disabled to get disability.
@lymenews @lyme_x @khoney # is not sharing how the new tests in the #diagnosticchallenge will be validated. that has to be done- measured against #cdc’s 71% false negatives test or their fake cdc #lyme serum that only had those who don’t get very sick from lyme. if use those, they will say too many +
@tickedofflymie yes, exactly! a lot of #lyme recommendations- from #tbdwg & # (which is #hhs) put control of anything that could be good into agency hands- and the same #bigpharma controlled guys that have been doing bad crap to us for decades will be in charge.
a huge problem with the # #diagnosticschallenge is the new tests will be measured against the cdc false negatives test or the cdc #lyme serum that is only from people that don’t get that sick from #lymedisease. trusting cdc to control replacing their lyme serum a good idea?
highlights the fact that there have been no breakthroughs in lyme disease diagnostics in 25 years! https://t.co/pinmmpeoox
kristen honey talking about presentation on the tick borne disease working group https://t.co/dwdjx1ucrn
dr. kristen honey: update @lyme_x @khoney #tbdwg https://t.co/9ml5hlvl6a
tune in live now for the presentation at the tbdwg meeting. https://t.co/eg0olurdhw
the 21st meeting of the tick-borne disease working group is underway. public comment period shortly followed by an update from the team. agenda available here https://t.co/ol4yy6vlnz. @cohengive @hhsgov https://t.co/j5curgjcjm
@divegirld yes- funds & we need a different everything. # is #hhs & they are still doing the same old things - they put sood & aldf onto the #tbdwg. they published #lyme is just disruptive instead of disabling. & their testing challenge- it’s set up to show good tests=false positives.
it’s criminal the federal “health” agencies keep manipulating #lymedisease medicine & the things they claim are turning the tide- when they are just manipulating those things too (like the #tbdwg & #) - while #lyme patients are suffering & doubting if they will make it!
the 21st meeting of the tick-borne disease working group starts tomorrow weds. 4/27/22. check out the update 4/27 at ~10:40am est. agenda available here https://t.co/ol4yy6vlnz. @cohengive @hhsgov https://t.co/0g3zrimukw
don't forget! #morgellons disease is associated with #lyme disease. treating #lyme disease seems to be the key to treating #morgellons disease. learn more from the tick-borne disease working group and . they are on forefront of lyme disease science and validation.
@de
@de baby
@divegirld unfortunately # is #hhs. hhs says they are working with patients to change #lymedisease medicine while hhs puts shapiro (says don’t believe patients & their registries) & sood onto the #tbdwg to control the vote & keep #lyme medicine from progressing.
the 21st meeting of the tick-borne disease working group is this weds. 4/27/22 - thurs. 4/28/22. check out the update presentation 4/27 at ~10:40am est. agenda available here https://t.co/ol4yy7dmf7. @cohengive @hhsgov https://t.co/onq2bqerjc
@de -
@cdc_ncezid @lyme_x the #hhs, #cdc, & #nih run # & the federal lyme & co-infections working group (#tbdwg) to continue the coverups- to pretend the cdc #lymedisease test works & #lyme isn’t disabling, deny future good tests, control research $, & to stay out of jail for #crimesagainsthumanity.
@krisnewby @cdc @lymenews @projectlyme 2 of those are concerning- appear to be tactics by the feds to give #lyme patients hope 2 silence them. #tbdwg is again manipulated by #hhs leaders & fed reps so they have sood to control the vote. & # is #hhs & diagnostic challenge is feds ensuring no new good test allowed.
@lyme_x @cohengive why doesn’t # just say #lymedisease can cause great suffering & illness & #disability? instead, it says #lyme is merely “disruptive” while it’s ‘partner,’ hhs puts shapiro and sood onto the #tbdwg to control the vote & pursue things like patient registries aren’t credible.
@de bubu was los🥺
@lyme_x @cohengive @cdc_ncezid why is # recommending the #cdc #lyme test with its 71% false negatives (at best- bay area lyme, 2020)? because # is #hhs, part of the federal #bigpharma machine to ensure profitable illness. https://t.co/epnoozwbsq
thx @ for your support!! we need all hands on deck & everyone tracking and reporting!! thx @liv_lyme & @cohengive!! 💚🙌👍
@de @binangixd @kenqyawt @emskaa2
@de du musst diesen tiktok trend machen wenn du ein gf hast diese „wake up in the morning, brush my teeth before i see my queen“
@solny9 i agree with
#lyme #lymedisease # #hhs #cdc #crimesagainsthumanity - the #lymerevolution is coming but it’s ours! not the feds’!
@lyme_x @cohengive if patients were part of the equation 1. #hhs wouldn’t be involved. hhs just put sood onto the tbdwg to replace shapiro/control the vote. 2.the 2020 # report wouldn’t have said #lyme is merely disruptive instead of #disabling. 3.test-challenge wouldn’t use #cdc test or serum
become a citizen scientist today! help track and report ticks with the free tick tracker app. the @liv_lyme foundation submitted this winning solution to the 2021 education & awareness “healthathon” challenge. https://t.co/oac3iurx0f @cohengiv https://t.co/zevpfflu7l
@fyfygaming
@hhsgov @hhs_ash @secbecerra what’s the new #hhs budget mean for #lymedisease patients? evidently nothing good. #hhs is still at manipulating #lyme & covering up past deeds. they put sood onto the #tbdwg to control the vote & #hhs’s # won’t say how new #lyme tests in their challenge will be validated.
@lymeontario @bayarealyme @yale @ @capublichealth @idsa @ucsf_id @nih @medical_xpress i just wish people would recognize how much this effects all of us🇨🇦🍻
@acmetodd @bayarealyme @yale @ @capublichealth @idsa @ucsf_id @nih @medical_xpress sadly. it’s going to be another bad season!

@hhs_ash @hhsgov @ 2 of 3. the # #diagnosticschallenge enables the feds to ruin new #lyme tests-if using the #cdc’s 71% false negatives (at best) #lymedisease test or the cdc’s fake lyme serum (that is only from those who don’t get that sick), tests will look to have too many false positives.

@hhs_ash @hhsgov 1 of 3. #hhs is using # (which it runs) to give patients false hope & to continue manipulating #lyme medicine for #bigpharma profit & to keep past deeds covered up. as #hhs has said, the goal of @ is to control both federal and private research money. = hhs #lyme

as we head into warmer weather, it's time to get serious about the tick check dance. https://t.co/thsxvjaqyb a # education & awareness “healthathon” challenge winning solution from @palyme1, dare 2b tick aware, @invisibleintl, louis & dan and the invisible band. @cohengive

@lymeloonies @ #hhs is using # to present false hope that they are working towards a real & accurate #lymedisease test- yet the tests have to be validated & @ refuses to tell us how that will be done. using the #cdc test or serum will make them look to have many false positives.

@lymeloonies 3/2020 bay area lyme showed that the cdc’s acute-only #lymedisease test results in 71% false negatives & there is no #longterm #lyme test. there must be a special ruling for lyme disability. rather than push for that # (#hhs) published lyme is merely “disruptive.” @

@lyme_x @cohengive @hhsgov @hhs_innovates to do that # will have to start answering #lymedisease patients’ questions they ignore & drop #hhs that is still using tactics like putting sood, shapiro, wormser onto the #tbdwg to keep #lyme information from coming out. lyme isn’t just “disruptive!”

@lymeconcerns @lmiller02332699 @truthmedical @ exactly.

lda may news: dr. jones/societal cost/cd4 t cells/horowitz/trauma & loss/lyme & mental illness/alpha-gal/tick bites/b. duncani/lyme vax/$10m prize/cat owners/tick stik/county levels/bullous em/pat smith video #lda #lymediseaseassociation https://t.co/jau8eym8hr

@quincys16831534 @lmiller02332699 @truthmedical @ thank you for being active & informed! & replying!

@quincys16831534 @lmiller02332699 @truthmedical @ it’s looking that way. in the past they’ve tried answering (said they said #lyme was disruptive instead of disabling because they wanted to avoid using labels (labels needed to get disability). more of us asking, the more of us see they aren’t patient-centric & are using tactics

@lmiller02332699 @truthmedical @lymeconcerns @ they'll never answer.

& when the #hhs tells us their # is doing good things for #lyme patients & is patient-centric, is hhs & #hhs just put sood onto the #tbdwg & he is one of these #aldf/#idsa anti-long-lyme players & he was at dearborn where & when they made #lymedisease testing fail.

@llyme21 @kittenbusk81 @lymeconcerns @ i'm agree with that. all of us must be in alert everytime cause around us skarks, predators for make money with routing us to pharma business. they can sell mothers, fathers, everything for money, don't be a slave, don't show your hopeless take care !

#lyme peeps, we need to keep liking & retweeting 2 send it out again. u hit retweet & then the quote option- to add your own #hashtags & @usernames. #hashtags get the tweets in search results of that same word. @usernames get them notified of the tweet. like #lymedisease & @

@doelyme @ yes! the word is getting out! #lyme patients aren’t fooled any longer with federal agency tactics designed to string patients along with false hope while the feds keep manipulating those things to keep #lymedisease medicine from evolving! # #tbdwg

@lymeconcerns @ @ - #lymedisease patients want to know, why do you keep ignoring us if you aren’t really just a false hope arm of the #hhs? what are you doing to ensure the new #lyme tests in your diagnostics challenge aren’t going to fail just like the #cdc lyme test or serum? #

@lymeconcerns @ @, how will the tests in the diagnostics challenge be validated? against the #cdc’s acute #lyme test of 71% false negatives (worse if it’s not acute) or the cdc’s false #lymedisease serum from only those who don’t get very sick? # is controlled by #hhs=false hope.

@lmiller02332699 @ajackso63831215 @lyme_x @hhsgov @cohengive yes, where’s the answer #? don’t you claim to listen to patients? #lymedisease patients keep asking how the new #lyme tests will be validated. by #cdc failed lyme test if cdc fake lyme serum? & why’d you screw us by saying lyme is just disruptive?

so the #cdc made their #lymedisease testing failure even worse- yes, that’s hard to imagine but they did. how is it the #tbdwg & # are helping #lyme patients? false hope from manipulated anti-long-lymers isn’t helping. https://t.co/l9qkfpkval

@nqrman is dat

has a new website! visit us at https://t.co/yo5sk48296 and let us know what you think. email feedback to lymeinnovation@hhs.gov. @cohengive @hhsgov @hhs_innovates #lymediseaseawarenessmonth #togetherredefiningthelymestatusquo https://t.co/jtab2ajtmk

$1 million diagnostics prize launches to improve lyme disease testing https://t.co/hsjnkil5pi

the diagnostics prize is to develop #diagnostics that can accurately detect active #lymedisease infections. via @luminarylabs https://t.co/hec89ikomv

we desperately need improved #lymedisease diagnostics. the ⁦@hhsgov⁩ & ⁦@cohengive have launched the @lyme_x diagnostics prize. $10 million diagnostics prize launches to improve lyme disease testing | https://t.co/gxtord8lnb https://t.co/npaxhpwbdx

the u.s. department of health and human services and the steven and alexandra cohen foundation have launched the diagnostics prize. it’s a $10 million competition to accelerate the development of new ways to diagnose #lymedisease https://t.co/zzclpfosq0

@lyme_x @hhsgov @cohengive we keep asking & @ keeps ignoring us, the patients! his will the #lyme tests be validated? #cdc’s 71% false negatives acute only #lymedisease test? # is run by #hhs.

although there is no safe #tick attachment time & it’s known to be incorrect, sunil sood has told audiences it takes 48-72 hours to transmit #lymedisease & #hhs put him onto the #tbdwg & #lyme treatment subcommittee to control the vote & report. # is #hhs & is manipulated

https://t.co/rriss5skrj $1 million diagnostics prize launches to improve lyme disease testing

@xf3rrero @de on tour

#lyme #aldf #hhs #tbdwg # #hhs #lymedisease ticks earlier laid 2000 eggs, now x3. a coming pandemic. lyme has cousin - syphilis. no cure because of $. dr r. horowitz: but to stay stuck at this point after 40 years of this illness it is a medical crime against humanity

# is #hhs & hhs still implements the same immoral & shady tactics the feds always have for #lymedisease. if were interested in a good #lyme test or doing good for patients, it wouldn’t be run by the same agency that is also doing things like putting sood on the #tbdwg

2 of 2: #hhs put sood onto the #tbdwg to control the vote & #lyme treatment info (only subcommittee info can go into the final report) -while at the same time has been telling us they are patient-centric in their # effort ( is hhs). how’s not a ploy of false hope?

[3/3] @lyme_x is identifying, developing, and implementing advancements in lyme disease care. in addition to accelerating next-generation diagnostics, is spearheading development of human-centered solutions and fostering breakthroughs in education and awareness.

$10 million diagnostics prize launches to improve lyme disease testing | hhs gov https://t.co/khf2bhwnco #lymediseaseawarenessmonth #diagnostics #testing #innovation #science #publichealth #lyme @cohengive @challengegov

hhs, cohen foundation launch $10m competition for new lyme disease diagnostics. the diagnostics prize competition is accepting proposals for new methods to detect active lyme disease infections in humans. https://t.co/piejlh881f

$10 million diagnostics prize launches to improve lyme disease testing | hhs gov https://t.co/9ifcbavfcm @lyme_x @cohengive @hhs_innovates @challengegov diagnostics prize info: https://t.co/qwg1z689vp 💚 # 💚 #lymeinnovation 💚 #lymetippingpoint

$10 million diagnostics prize launches to improve lyme disease testing https://t.co/qzely2i9dh

from lda website: new lyme research opportunity: hhs launches $10m diagnostics prize https://t.co/4nnjawgbb7

info on the @ phase 1 prize competition for detecting "active #lyme infections in people". concepts due august 8. see below! # #diagnostics #prize #research #science #innovation

the #lymediagnostics prize is sponsored by @lyme_x, a partnership between @hhsgov & @cohengive. in addition to accelerating next-generation diagnostics, is spearheading development of human-centered solutions and fostering breakthroughs in education and awareness.

through this multiphase # competition, @hhsgov and @cohengive aim to develop diagnostics that can accurately detect active #lyme disease infections. learn more at the june 16 virtual information session: https://t.co/ji4e03k3cy #lymediseaseawarenessmonth #diagnostics 2/2 https://t.co/amrylkfvjh

@altgovdoc @khoney the same #hhs that put wormser, shapiro, & now sood onto the #tbdwg to control the vote & #lyme treatment subcommittee, runs # & the #lymedisease diagnostics challenge. haven’t said yet how new tests will be validated. against #cdc lyme test or serum of non-#longlyme cases?

lyme x #lyme_x # … #lyme_disease #lymedisease #hhs #top_experts #institutional_betrayal

so #hhs started # (i thought it was a nonprofit) & they’ve been saying they are doing great things for #lymedisease patients but this whole time they’ve been putting aholes onto the #tbdwg to keep persistent #lyme out of their publications. this is 3rd time they’ve done it.

#hhs runs #. #hhs put sood & an aldf advisor onto the #tbdwg. those 2 things #lymedisease patients are being given false hope with-the controlling feds are still manipulating. see how the #tbdwg is manipulated & 1 doozy of a fight #lyme advocates win! https://t.co/lzdvcfnxfm

#cdc, #nih, & #hhs put sood onto the #tbdwg to control them tbdwg vote & report to congress- knowing he’s been pushing false #lymedisease info for years. now we are to believe #, run by the #hhs, is doing good for #lyme patients?

@inappro_ali yes sood has been giving out incorrect & bad #lymedisease advice for years and the cdc, nih & hhs (hhs is in charge of #) put sood in control of the deciding #tbdwg vote, knowing full well he’s been pushing false #lyme info for years!

if it’s the tipping point for #lymedisease & # and the #tbdwg are making that difference predicted 2 years ago & 5 years respectively, then where are the public service announcements about #lyme being disabling & demanding #doctors are protected & insurers pay for treatment

learned from patients through almost 700 hours of interviews, listening sessions, and workshops. juan’s story shows us there’s a need for improved #diagnostics. (https://t.co/z4csnxkdwg ) #health+("healthplus") @coformahealth #lymeawarenessmonth @cohengive https://t.co/idrdoktapw

@de @justvalerie127 ey

@lymenews @khoney @lyme_x @liv_lyme # won’t tell us how their #diagnosticschallenge will be validated. through #cdc’s acute lyme test of 71% false negatives or #cdc’s false #lyme serum that’s from people who don’t get very sick? have to validate somehow, it’s required, so if use those 2 ways tests are doomed

why doesn’t insurance & medicare pay for #lymedisease clinics like #envita? (or any treatment?) why haven’t we heard the #tbdwg or # pushing for that, hard? besides the feds controlling both & insurers & #bigpharma wouldn’t like it. #lyme @envitamedical

the livlyme virtual summit is under way. catch up on what is up to as hhs's dr. kristen honey provides an update on the past year's achievements on behalf of lyme disease community. https://t.co/wqptclr1l6 @liv_lyme @cohengive https://t.co/46f06kw3go

#lyme “so sour! but you’re so sweet for all that you’re doing! keep it up!” 💚💚💚 the force is *strong* with this one #oliviagoodreau @liv_lyme #maythefourthbewithyou #lymetippingpoint #lymeinnovation #theforce # https://t.co/vytjnajogh

@liv_lyme @markhamill @lymechallenge @oliviagoodreau @starwars @jokermovie @jokertv @starwarsexplain #lyme “so sour! but you’re so sweet for all that you’re doing! keep it up!” 💚💚💚 the force is *strong* with this one #oliviagoodreau @liv_lyme #maythefourthbewithyou #lymetippingpoint #lymeinnovation #theforce # https://t.co/wmbl9ty9ge

catch up on what is up to at the livlyme virtual summit https://t.co/azldwmyncd this sat. may 7th. hhs's dr. kristen honey will be providing an update on the past year's achievements on behalf of the #lyme disease community. @liv_lyme @cohengive https://t.co/ohektrumby

@dilxsch was mit

im clutch https://t.co/tfgquato76

@lyme_x @cohengive # is also persuading researchers to join their diagnostics challenge but won’t tell them or #lyme patients if they will be using the #cdc false-negatives #lymedisease test or fake cdc lyme serum (not from #longlyme patients) to claim the tests have too many false positives.

@lyme_x @cohengive # published #lymedisease was merely “disruptive.” it’s also working with #hhs, #cdc, & #nih when those 3 have been & still right now are working to keep lyme truths from being disclosed. they also have been manipulating the #tbdwg. why would we trust then?

@de let’s go

@de stark

@de omg stark bald 1k

@lyme_x @lymenews @cohengive @hhsgov the #bigpharma-agenda, anti- #longlyme feds have to be removed from the federal agencies before any good effects will be realized from # and #tbdwg recommendations. #lyme #lymedisease

@stephen02873518 @ajackso63831215 the corrupt #bigpharma-agenda feds have to be removed from the agencies & disclosure of why must happen before any #tbdwg or # recommendations will have a good effect.

@lymeconcerns @lymenews @lyme_x @khoney we must get the feds out of the process that’ve been serving the #bigpharma #idsa & #aldf agenda of illness for profit for decades! #lyme medicine will not be allowed to progress til they are out of the agencies! #lymedisease peeps-join the lyme revolution on fb! # is #hhs!

@lymenews @lyme_x @lymemind @cohengive @hhsgov # published #lymedisease is merely “disruptive” that seems like a stride backwards to me…. they said it was to avoid “labels” but you have to be labeled disabled to get disability.

@lymenews @lyme_x @khoney # is not sharing how the new tests in the #diagnosticchallenge will be validated. that has to be done- measured against #cdc’s 71% false negatives test or their fake cdc #lyme serum that only had those who don’t get very sick from lyme. if use those, they will say too many +

@tickedofflymie yes, exactly! a lot of #lyme recommendations- from #tbdwg & # (which is #hhs) put control of anything that could be good into agency hands- and the same #bigpharma controlled guys that have been doing bad crap to us for decades will be in charge.

a huge problem with the # #diagnosticschallenge is the new tests will be measured against the cdc false negatives test or the cdc #lyme serum that is only from people that don’t get that sick from #lymedisease. trusting cdc to control replacing their lyme serum a good idea?

highlights the fact that there have been no breakthroughs in lyme disease diagnostics in 25 years! https://t.co/pinmmpeoox

kristen honey talking about presentation on the tick borne disease working group https://t.co/dwdjx1ucrn

dr. kristen honey: update @lyme_x @khoney #tbdwg https://t.co/9ml5hlvl6a

tune in live now for the presentation at the tbdwg meeting. https://t.co/eg0olurdhw

the 21st meeting of the tick-borne disease working group is underway. public comment period shortly followed by an update from the team. agenda available here https://t.co/ol4yy6vlnz. @cohengive @hhsgov https://t.co/j5curgjcjm

@divegirld yes- funds & we need a different everything. # is #hhs & they are still doing the same old things - they put sood & aldf onto the #tbdwg. they published #lyme is just disruptive instead of disabling. & their testing challenge- it’s set up to show good tests=false positives.

it’s criminal the federal “health” agencies keep manipulating #lymedisease medicine & the things they claim are turning the tide- when they are just manipulating those things too (like the #tbdwg & #) - while #lyme patients are suffering & doubting if they will make it!

the 21st meeting of the tick-borne disease working group starts tomorrow weds. 4/27/22. check out the update 4/27 at ~10:40am est. agenda available here https://t.co/ol4yy6vlnz. @cohengive @hhsgov https://t.co/0g3zrimukw

don't forget! #morgellons disease is associated with #lyme disease. treating #lyme disease seems to be the key to treating #morgellons disease. learn more from the tick-borne disease working group and . they are on forefront of lyme disease science and validation.

@de

@de baby

@divegirld unfortunately # is #hhs. hhs says they are working with patients to change #lymedisease medicine while hhs puts shapiro (says don’t believe patients & their registries) & sood onto the #tbdwg to control the vote & keep #lyme medicine from progressing.

the 21st meeting of the tick-borne disease working group is this weds. 4/27/22 - thurs. 4/28/22. check out the update presentation 4/27 at ~10:40am est. agenda available here https://t.co/ol4yy7dmf7. @cohengive @hhsgov https://t.co/onq2bqerjc

@de -

@cdc_ncezid @lyme_x the #hhs, #cdc, & #nih run # & the federal lyme & co-infections working group (#tbdwg) to continue the coverups- to pretend the cdc #lymedisease test works & #lyme isn’t disabling, deny future good tests, control research $, & to stay out of jail for #crimesagainsthumanity.

@krisnewby @cdc @lymenews @projectlyme 2 of those are concerning- appear to be tactics by the feds to give #lyme patients hope 2 silence them. #tbdwg is again manipulated by #hhs leaders & fed reps so they have sood to control the vote. & # is #hhs & diagnostic challenge is feds ensuring no new good test allowed.

@lyme_x @cohengive why doesn’t # just say #lymedisease can cause great suffering & illness & #disability? instead, it says #lyme is merely “disruptive” while it’s ‘partner,’ hhs puts shapiro and sood onto the #tbdwg to control the vote & pursue things like patient registries aren’t credible.

@de bubu was los🥺

@lyme_x @cohengive @cdc_ncezid why is # recommending the #cdc #lyme test with its 71% false negatives (at best- bay area lyme, 2020)? because # is #hhs, part of the federal #bigpharma machine to ensure profitable illness. https://t.co/epnoozwbsq

thx @ for your support!! we need all hands on deck & everyone tracking and reporting!! thx @liv_lyme & @cohengive!! 💚🙌👍

@de @binangixd @kenqyawt @emskaa2

@de du musst diesen tiktok trend machen wenn du ein gf hast diese „wake up in the morning, brush my teeth before i see my queen“

@solny9 i agree with

#lyme #lymedisease # #hhs #cdc #crimesagainsthumanity - the #lymerevolution is coming but it’s ours! not the feds’!

@lyme_x @cohengive if patients were part of the equation 1. #hhs wouldn’t be involved. hhs just put sood onto the tbdwg to replace shapiro/control the vote. 2.the 2020 # report wouldn’t have said #lyme is merely disruptive instead of #disabling. 3.test-challenge wouldn’t use #cdc test or serum

become a citizen scientist today! help track and report ticks with the free tick tracker app. the @liv_lyme foundation submitted this winning solution to the 2021 education & awareness “healthathon” challenge. https://t.co/oac3iurx0f @cohengiv https://t.co/zevpfflu7l

@fyfygaming

@hhsgov @hhs_ash @secbecerra what’s the new #hhs budget mean for #lymedisease patients? evidently nothing good. #hhs is still at manipulating #lyme & covering up past deeds. they put sood onto the #tbdwg to control the vote & #hhs’s # won’t say how new #lyme tests in their challenge will be validated.

@lymeontario @bayarealyme @yale @ @capublichealth @idsa @ucsf_id @nih @medical_xpress i just wish people would recognize how much this effects all of us🇨🇦🍻

@acmetodd @bayarealyme @yale @ @capublichealth @idsa @ucsf_id @nih @medical_xpress sadly. it’s going to be another bad season!